12th Annual EBMT Patient, Family & Donor Day

/12th Annual EBMT Patient, Family & Donor Day
12th Annual EBMT Patient, Family & Donor Day 2017-12-04T20:50:42+00:00
Saturday, March 17th 2018
Venue: Centro de Congressos de Lisboa; Room 3A and 3B
Languages: Portuguese and English
CLICK HERE TO REGISTER FOR FREE

The 12th edition of the EBMT Patient, Family and Donor Day is dedicated to people who have had, or are going to have, a bone marrow or stem cell transplantation, and anyone affected by blood cancer or a blood disorder, as well as their relatives, caregivers and donors.

The objective of this special program is to allow the patients involved in a transplant process, and the family members and donors, to exchange experiences, learn from each other and also learn more about the latest research outcomes in the field from a panel of specialists.

We look forward to welcoming patients, families and donors from near and far to take part in this unique and memorable experience.

Programa

Sessão 1
9:25 – 10:30
Moderador: Manuel Abecasis, Portugal

9:25-9:30 – Boas vindas e introdução (M. Abecasis, Portugal)
9:30-9:50 – O que é um transplante hematopoiético? (C. Martins, Portugal)
9:50-10:10 – Escolha do produto hematopoiético para transplante (M.J. Gutierrez, Portugal)
10:10-10:30 – Diferentes fases na progressão do processo do transplante hematopoiético (F. Moita, Portugal)

Coffee Break

Sessão 2
11:00 – 12:30
Moderador: Fernanda Soares, Portugal

11:00-11:20 – Cuidados de enfermagem do doente na unidade de isolamento (E. Oliveira, Portugal)
11:20-11:40 – Cuidados de enfermagem do doente no hospital de dia (C. Santos, Portugal)
11:40-12:10 – O doente durante o processo de transplante hematopoiético (C. Franco, Portugal; E. Fraio, Portugal; C. Horta E Costa, Portugal)
12:10-12:30 – Momento cultural – Performance de guitarra de um doente (João Lopes, Portugal featuring Isabel Bogalho, Portugal)

Intervalo para almoço

Sessão 3
13:30 – 14:35 Moderador: Helder Trindade, Portugal

13:30-13:45 – O papel do registo português de dadores (CEDACE) (H. Trindade, Portugal)
13:45-14:00 – O papel do registo espanhol de dadores (REDMO) (N. Marieges, Spain)
14:00-14:15 – O papel do registo brasileiro de dadores (REDOME) (D. Oliveira, Brazil)
14:15-14:25 – Ser dador familiar (N. Lino, Portugal)
14:25-14:35 – Ser Dador não relacionado (TBC)

Coffee Break

Sessão 4
15:00 – 16:30 Moderador: Elsa Oliveira, Portugal

15:00-15:15 – Implicações sociais do transplante (M. Guerreiro, Portugal)
15:15-15:30 – O papel dos professores numa unidade de transplante (D. Ribeiro, Portugal)
15:30-15:40 – O papel das associações – APCL (M. Búrigo, Portugal)
15:40-15:50 – O papel das associações – Acreditar (A. Correia, Portugal)
15:50-16:00 – O papel das associações – LPCC (H. Grilo, Portugal)
16:00-16:10 – O papel das associações – ADL (F. Ferreira, Portugal)
16:10-16:20 – APLL: atividades focadas nos doentes e cuidadores (I. Barbosa, Portugal)
16:20 – 16:30 – Encerramento

Temos o prazer de vos convidar a apreciar os trabalhos artisticos e livros realizados por pessoas submetidas a transplante de medula óssea e que estarão disponiveis nos intervalos das sessões do “Patient, Family and Donor Day”.

Maria Manuel Pedrosa (Portugal)
Manuela Ribeiro (Portugal)
Joaquim Rosado (Portugal)

Program – English

Session 1
9:25 – 10:30
Chair: Manuel Abecasis, Portugal

9:25-9:30 – Welcome and Introduction (M. Abecasis, Portugal)
9:30-9:50 – What is a hematopoietic transplant? (C. Martins, Portugal)
9:50-10:10 – Choice of the stem cell product for transplant (M.J. Gutierrez, Portugal)
10:10-10:30 – Different progression phases of the transplant process (F. Moita, Portugal)

Coffee Break

Session 2
11:00 – 12:30
Chair: Fernanda Soares, Portugal

11:00-11:20 – Nursing care of the patient in the isolation unit (E. Oliveira, Portugal)
11:20-11:40 – Nursing care of the patient in the day unit (C. Santos, Portugal)
11:40-12:10 – The patient through the transplant process (C. Franco, Portugal; E. Fraio, Portugal; C. Horta E Costa, Portugal)
12:10-12:30 – Cultural Moment – Patient Guitar Performance (João Lopes, Portugal featuring Isabel Bogalho, Portugal)

Lunch Break

Session 3
13:30 – 14:35
Chair: Helder Trindade, Portugal

13:30-13:45 – The role of the Portuguese donor registry (CEDACE) (H. Trindade, Portugal)
13:45-14:00 – The role of the Spanish donor registry (REDMO) (N. Marieges, Spain)
14:00-14:15 – The role of the Brazilian registry (REDOME) (D. Oliveira, Brazil)
14:15-14:25 – On being a donor related (N. Lino, Portugal)
14:25-14:35 – On being a donor related (TBC)

Coffee Break

Session 4
15:00 – 16:30
Chair: Elsa Oliveira, Portugal

15:00-15:15 – Social implications of the transplant (M. Guerreiro, Portugal)
15:15-15:30 – Teaching children in a transplant unit (D. Ribeiro, Portugal)
15:30-15:40 – The patient association’s role – APCL (M. Búrigo, Portugal)
15:40-15:50 – The patient association’s role – Acreditar (A. Correia, Portugal)
15:50-16:00 – The patient association’s role – LPCC (H. Grilo, Portugal)
16:00-16:10 – The patient association’s role – ADL (F. Ferreira, Portugal)
16:10-16:20 – APLL activities focused on patients and caregivers (I. Barbosa, Portugal)
16:20 – 16:30 – Closing

We are also pleased to announce that the following patients will be presenting their artwork and/or books they’ve published during the Patient, Family and Donor Day, which we invite you to enjoy during the breaks:

Maria Manuel Pedrosa (Portugal)
Manuela Ribeiro (Portugal)
Joaquim Rosado (Portugal)